|
CHARG Resource Center
"Partners for Change" "The mission of CHARG Resource Center is to advance a model of genuine partnership among individuals who live with mental illness, mental health professionals, and the larger community through respectful comprehensive services." |
||
|
|
Stories |
Capitol Hill, Denver Colorado |
|---|---|---|
| Home | About Us | Services | What's New | Consulting | Photo Album | Links / Ads | Starfish |
|---|---|---|---|---|---|---|---|
| Publications | Support CHARG | FAQ | Volunteers | Art / Artists | Contact Us | Speakers Bureau | Site Map |
| Living With Remission | CHARG Co-Presidents | Zim Olson's Speech |
|---|
| Living With Remission by Pamela S. Carter Top of Page |
|
My days are serene yet full of purpose: reading, writing; tending to the small potted plants in my writing room; grooming and training my dog; reaching out to the people neglected in the acute phase of my illness; interacting with loved ones in a relatively normal way. I am full of hope that this time the productivity and satisfaction with my life will last forever, though I know from experience this isn’t possible. Only a few weeks ago I spent my days lying in bed with the shades drawn against the brightness of the day and my eyes closed against everything in my Spartan hospital room, or sitting on the “smoking patio,” avoiding eye contact with the others seeking solace in nicotine. I dressed in loose, blue hospital scrubs, the badge of those of us locked in the small psych unit in a large hospital. I stared at the “soothing” neutral-colored walls, seeing nothing, my shoulders slumped in defeat; the mental illness I have lived with for over five decades had won yet another battle in the war for control of my life. Now I have stepped out of the tunnel into the light barely glimpsed during the days in the hospital and though I know I am not destined to remain here forever—or perhaps even very long—I don’t truly believe that. Remission brings its own distortions of reality. The reality is that something I may not even recognize as stress has the power to send me back to the tunnel or—worse in some ways—the too-bright kaleidoscopic world of mania. There is a motto—a promise of sorts—stenciled onto the wall of my writing room that reads: “The next remission is as inevitable as the next mood episode.” Experience tells me this, too, is true, and while I find it comforting when I am ill, it isn’t something I dwell on during periods of remission. I am quite knowledgeable about the disorder that has affected my life for as long as I can remember, both from experience and from extensive research. Nevertheless, when the peace of remission settle on me like a mantle, I begin to believe that if I do all the “right things,” I can remain in this state indefinitely. This is the distortion of perception in remission; no matter what I do or don’t do, someday—maybe not today or next week or even next month…but someday—I will descend onto a gray, arid, featureless plain or even into the darkness that convinces me I am nothing, less than nothing, unworthy of life…or soar into the false celestial music that convinces me I am invincible and entitled to take whatever I want whether from loved ones or total strangers. While my perceptions in both states are distorted, are they really any more unrealistic than my refusal to recognize the inconstancy in my life is rooted in neurobiology over which I have as much control as I would over a malfunctioning pancreas that can no longer regulate blood sugar? If biology is truly my destiny—though not in the way feminists so eloquently rail against—I must admit it isn’t all bad. I joke sometimes that normalcy is highly overrated, though at a deep level I take that seriously. However much I may lament the losses that have resulted from this rollercoaster ride of a life (two marriages and countless friendships to date), I also value the entwined threads of personality and brain disorder that have produced the intensely emotional and creative woman I am today. I can no longer distinguish disorder from personality, and it is only in remission I think I see what might have been—perhaps yet another distortion—and crave this relative peace, the ability to trust my judgments, to have me teeth not embedded in my tongue to keep from saying things I will regret later—or worse, to give free rein to my irritation with lesser mortals. Perhaps I can appreciate the “normalcy” of remission only because of the contrast to the changeability that is informs the rest of my life. Do I dread the next bout of darkness or chaotic destruction? Of course I do; I will continue to take medication, structure my days, and stick to my sleep schedule to ward them off as long as possible. When they come despite all that, I will endure—something else I have learned from this illness—until the next remission, which after all, is inevitable as well.
|
|
Zim Olson's presentation for (ABC) Access Behavioral
Care Consumer Advocate Chair - Elections were on August 5, 2008 -
He now has a two year term as ABC Consumer Chair.
Top of Page |
|
My Name is Zim Olson I was first diagnosed with Schizophrenia in 1976. I have been on Social Security Disability since 1985. I received my Bachelor's of Science degree from Oakland University in Rochester Michigan in 1979. I have worked a few years as a Software Engineer. I have been on the CHARG Resource Center Board of Directors most of the time since 1989. I have worked as an advocate since then paid and unpaid. As an advocate for CHARG I drove consumers to Ft. Logan Hospital to talk to the patients at least once a month for 2 plus years until I had to retire my car from old age. The program I began was celebrated by Luisa Lumbano the then Advocate for Ft. Logan Hospital. I also feel it was a very worthwhile program. For four years I edited and produced and mailed the CHARG Resource Center newsletter. It was a truly consumer run newsletter. I now am webmaster of CHARG's web site: www.charg.org . I was the ABC Consumer Chair many years ago. I talked to many consumers personally and asked them every month what concerns they wanted me to bring to the Management Council. And I did faithfully every month. One issue I brought up was the unreliability of Accessa Ride, which the Management Council took serious note of at the time. It appears it may need some more oversight soon from what I hear now. I have been giving my input to the State Request for Proposal for Medicaid over the years. This year I submitted an email asking that consumers be given more responsible positions, more important information on budget, policy and Mental Health Center outcomes AND that Mental Health be put back into the Outcomes of Behavioral Health. Not just simple behavioral outcomes , but include such things as emotional health and cognitive health and intellectual health in their outcome reports. I have been married to my wife also a mental health consumer for past 17 years. I am the Author / Owner of a Creative Math web site at zimmathematics.com. If voted for , for Consumer Chair, I will continue to advocate for the Denver Medicaid Consumers as I have for past 19 years and Seek input from consumers which I can relay to ABC management. |
| Joanne Greenberg Story Telling- Video | CHARG Story Video | Freddy Bosco Video | Living With Remission | CHARG Co-Presidents | Zim Olson Speech | Speaker's Bureau |
|---|
|
Problems or questions about the site: |
About Us | Services | |What's New | Contact Us | Consulting | Photo Album | Links & Postings | Art & Artists| Publications | Support CHARG | FAQ | Volunteers | Speaker's Bureau | Starfish | Home | Site Map |